everything will be ok?

everything has wound down for now and i can finally exhale- it felt like my life was on hold for the last 2 weeks. my vulnerability had left me holding my breath. i guess a lot of my past has shaped a lot of my fears and inhibitions. there has been several firsts in my feeble journey to recovery for the last 2 years, and if i wasn’t scared, i was disappointed.

my resolution to avoid incarceration lasted for a little over 2 years. i was in and out of hospital too much between 2010 and 2013 and lost almost 2 whole years spent in psychiatric wards. thus the decision to stay “out in the wild” in October 2013 after one last discharge. to be honest when i was “committed” (i wasn’t, but if i had not consented, they would have), i was very disappointed with myself for letting myself fall this much. but when the situation arrived thus far, how was i to fight and say no? i recognised that i was acutely sick in the eyes of psychiatrist and i needed help. i was such a mess that if it didn’t happen then, it would have happened sooner or later. so i let go and i let God, and surrendered myself wholly to His will.

it was definitely over 2 years ago when i halted my ECT sessions at #41 when i felt memory slipping through my hands like sand, too much for me to bear. the amnesia from #1 never went away, and only built upon each other with each consequent session. to say the least it affected my studies back then, my work, and then also my personal life. there was no lack of resentment for the retrograde and anterograde amnesia. but on the other hand i was also grateful that it saved me from my sinking sadness (and severe depression) many a time. when i was offered ECT as a first-line this time, i gave it little thought and said yes in a heart beat. there was everything to risk, and nothing but memories to lose. so this time i stopped at #44, and sometimes i ask myself if it was worth it. but right here and now, i think it was a good move made. i don’t think i can ever say no to ECT indefinitely.

it was my first time “coming out of the closet” telling my Catholic community whom i dearly call Sinners, that i was in. never in my life had i ever come clean with a group of friends with my hospital admissions. what it has always been was that my best friend would inadvertently find out about me being inpatient before i even told her. i knew none of my friends took interest in the fact that i was always in and out. besides it was never something that i could say without shame. closer friends told me before “you’re admitted AGAIN???”. and it hurt. however life has changed since joining Sinners in July and they have been my pillar of strength and support. admitting to them that i was going to be inpatient because i have been feeling a certain way… was me letting my guard down with my brothers and sisters in Christ, letting them see the vulnerable side me, and letting them stretch out a helping hand to me. the outpouring of love from Sinners, and also staff from Office For Young People, gave me this inexplicable feeling of warmth and love that i’ve never felt before. and God used them as His glorious instruments to tell me how perfectly loved i am. for all of these i have no words but my utmost gratitude.

it is also my first time being down with pneumonia. i hadn’t had a true fever for about 10 years (yes despite all my DMARDs), so the fever (up to about 39.2) caught me by surprise first. then the faint patch seen on my chext x-ray on my right upper lobe was the shock. my white cell count (16.6) had skyrocketed (neutrophils and monocytes were also twice the upper limit) i could never have fathomed that me and a case of pneumonia could go together. at least not at this age. all the doctors who were involved in my case before my diagnosis thought it was me restarting MTX 3 weeks before my initial admission. after my diagnosis, they all seemed to think it was that, and that it was hospital acquired (i was already in the 2nd hospital before i made the transfer to the 3rd hospital). they had asked my rheumy as well and her orders were to hold off MTX until i see her in December. that was something i was bummed with. i received several doses of intravenous tazobactam/piperacillin. my vein got “burned” and now it hurts even when i’m home. they discharged me only when they were positive i wasn’t getting anymore fevers..

coming out of all of these different than when i first got admitted is really God-given grace. i prayed and i read and i wrote and i drew and i sang and i meditated, in my bid to maintain any semblance of sanity especially in my first week of hospitalisation. as usual, with matters of the mind, things get really heavy and suffocating, and anxiety-provoking at times. i don’t know how i pulled through, but i know it could only be that my good Lord carried me through. no?


 

right now, the most pressing issue is school. i had decided to defer my current 2 modules, seeing that i have/will miss 3 out of 5 weeks of lectures. but i was just informed that these 2 modules won’t be offered till next September, and that means i have to defer my Honours year as well. i don’t think this was part of what i signed up for, so i think i’ll have to get an extension for my 2 papers which are due end of this week (can you imagine i haven’t started on it???), and read the lecture notes for my exams the week after.

i’m so screwed???

 

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